A monthly allowance for each ALS patient to recruit an assistant familia r and Rome, Wednesday, November 18 17:00
I tune with the live show from the House while the session was adjourned. I can not believe, but you are risking the government crisis for patients with ALS.
happens that the speaker of the PDL brought into question the amendment announced, again without any planned expenditures and Fini said that without the famous 100 million votes against future and freedom. Fini himself suspend the sitting and arguing for an hour and a half, before putting pen to paper round figure. Back in the classroom and finally the measure is approved.
E 'was taken for the purpose of the ambiguous "promotion" of the sentence that would mean giving to those who has nothing to do, while the remaining two items on care and research. Well, the first step is done: now we must work for the aid to those who have really come in ALS: 10% for research (10 million requested) and 90% for families to recruit an assistant for one year familiare.
Ci batteremo perchè ogni Regione istituisca i registri degli assistenti familiari formati e perchè attivi, in analogia con quanto si è avviato nel Lazio, i corsi di formazione.
E' un'altra battaglia durissima, ma oggi è accaduto qualcosa di assolutamente nuovo e straordinario. Davide ha sconfitto Golia.
Ed Emanuele scrive, per il neonato Comitato 16 novembre, il primo comunicato stampa:
I tune with the live show from the House while the session was adjourned. I can not believe, but you are risking the government crisis for patients with ALS.
happens that the speaker of the PDL brought into question the amendment announced, again without any planned expenditures and Fini said that without the famous 100 million votes against future and freedom. Fini himself suspend the sitting and arguing for an hour and a half, before putting pen to paper round figure. Back in the classroom and finally the measure is approved.
E 'was taken for the purpose of the ambiguous "promotion" of the sentence that would mean giving to those who has nothing to do, while the remaining two items on care and research. Well, the first step is done: now we must work for the aid to those who have really come in ALS: 10% for research (10 million requested) and 90% for families to recruit an assistant for one year familiare.
Ci batteremo perchè ogni Regione istituisca i registri degli assistenti familiari formati e perchè attivi, in analogia con quanto si è avviato nel Lazio, i corsi di formazione.
E' un'altra battaglia durissima, ma oggi è accaduto qualcosa di assolutamente nuovo e straordinario. Davide ha sconfitto Golia.
Ed Emanuele scrive, per il neonato Comitato 16 novembre, il primo comunicato stampa:
FINANZIARIA: STANZIATI 100 MILIONI PER MALATI DI SLA E FAMILIARI Soddisfazione del Comitato 16 novembre nato dopo il presidio di martedì a Roma
In data odierna la Camera ha approvato l'emendamento alla Legge di stability which allocates € 100 million intended for research and the recruitment of domestic helpers, according to the promise Tuesday, November 16 with a delegation of people with Amyotrophic Lateral Sclerosis (ALS). On average it would be a contribution of approximately € 20 thousand per year per family. "We welcome a measure which, when confirmed by the Senate, will represent the first concrete act of paying attention to patients with ALS and their families, always ignored in any decision in favor of 'weak' - this hot comment Alberto Damilano, doctor and patient with ALS promoter Salvatore Use it in conjunction with the event before the Tuesday, November 16 Ministry of Finance -. It 's a great first win. That said, we invite all those who are mobilizing to us, in order to take on high alert and have in place all the possible forms of pressure because the whole amount to be allocated to that for which it was required: the necessary cover for the 'recruitment of a family assistant for each patient with ALS. "
"I am very satisfied because it is a year fight for a measure and there are those who are serious to lose time behind councils and commissions - make Salvatore Cagliari Usala -. Now we must be careful with four eyes turned to the hunters who want to undermine one hundred million seats for their own use and consumption. "
"We know that attempts to frustrate this outcome will not fail and that from tomorrow on this fund is to unleash the attack care - Use it and conclude Damilano -. It is time for ALS patients to begin to actually receive aid for home care who you are, so far, denied visas on time. "
The Committee November 16
(7. End)
. In data odierna la Camera ha approvato l'emendamento alla Legge di stability which allocates € 100 million intended for research and the recruitment of domestic helpers, according to the promise Tuesday, November 16 with a delegation of people with Amyotrophic Lateral Sclerosis (ALS). On average it would be a contribution of approximately € 20 thousand per year per family. "We welcome a measure which, when confirmed by the Senate, will represent the first concrete act of paying attention to patients with ALS and their families, always ignored in any decision in favor of 'weak' - this hot comment Alberto Damilano, doctor and patient with ALS promoter Salvatore Use it in conjunction with the event before the Tuesday, November 16 Ministry of Finance -. It 's a great first win. That said, we invite all those who are mobilizing to us, in order to take on high alert and have in place all the possible forms of pressure because the whole amount to be allocated to that for which it was required: the necessary cover for the 'recruitment of a family assistant for each patient with ALS. "
"I am very satisfied because it is a year fight for a measure and there are those who are serious to lose time behind councils and commissions - make Salvatore Cagliari Usala -. Now we must be careful with four eyes turned to the hunters who want to undermine one hundred million seats for their own use and consumption. "
"We know that attempts to frustrate this outcome will not fail and that from tomorrow on this fund is to unleash the attack care - Use it and conclude Damilano -. It is time for ALS patients to begin to actually receive aid for home care who you are, so far, denied visas on time. "
The Committee November 16
(7. End)
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